Saturday, March 12, 2022

Albert Spinestein or Jon Bone Jovi

I thought I would share this story which I wrote as a comment to my friend Self-Sufficient Sam (who used to be Farmgirl Sam until gremlins took that account). She wasn't happy with the information highway from her doctor's office and I had a similar experience last December. It has been something I have been ruminating about in my mind for a while. 

When I turned the magic age and joined the Medicare club, I made a doctor's appointment to get my prescriptions renewed on my new Plan D. My supplemental since age 60 did not cover doctor appointments and Covid had allowed me to coast through renewals for quite a while. 

My medical office makes you come in for an appointment and then orders lab work. I have begged to reverse this several times over the years, since it makes more sense to me that you would want to review current lab reports with the doctor. I have not won this argument. I took a list of health concerns I had at the time to the appointment and left with orders for lab work. My doctor said he would see me in a year. 

I went to the hospital and had blood work, a mammogram and a bone scan which was a last minute after thought, I believe because the office knew my insurance would cover the cost. 

Two days later I received a call from a young woman who I believe to be the receptionist. My lab work was normal which was better than I expected, but my bone scan showed big time problems. She chattered away about some shot he wanted to order for me that I would need to administer once a month and that I should start over the counter calcium supplements. I was stunned and did not ask the right questions other than how to spell the injection drug and whether I needed to make an appointment. She sputtered a bit and said I could talk to him at my next appointment. I said, well he said he would see me in a year and she sputtered and said she guessed that was okay.  

I looked up information about the injection and found there are a lot of side effects for the drug and once you begin the shots, you must self administer the shot every month for the rest of your life. If you need to miss a shot (for example, you have to skip a month if you have a dental appointment) you must do so under medical supervision. It sounds very scary to me.  She also gave me no advice on the supplement so I went to the drug store and made up my own regime with an over the counter supplement. 

I did go back to my account at our hospital and pulled up all my test results so I could study them. While doing so, I decided to print past test results, too, so I could compare them.  I found a chest x-ray I had prior to my surgery for my broken arm two years ago and on page two it mentions degrees of disintegration of my spine the chest x-ray picked up. I am sure that neither my doctor or my orthopedist looked at this x-ray. It was done for the anesthesiologist prior to my surgery and I bet he was the only one who read it. And skipped that part. 

I guess the moral is that I need to make sure I copy and read all my medical reports from now on so I can make my own diagnosis. Of course, now that I have read the bone scan, every time I get a back ache or any ache I am pretty sure it is one of my hollow bones collapsing. 

I did reach out to friends of a certain age (my age) and ask them what they know about these shots. No one has had them. Only one person had heard of them and said she heard they were awful. And anyone who did have any irregular results on a bone scan were put on an once a month pill.  Hopefully by next fall when I return for a visit I will be finished pouting about this and will be able to come up with a page of intelligent questions. 

Since I was new to Medicare and new to Part D, and because i already had to switch the Part D I had for three months of 2021 to a new Part D in 2022 when the cost of the first one tripled, I looked up the injection on the various Part D plans in my area. It is a tier 3 drug and would be quite expensive out of pocket. The whole situation is still maddening and I am counting how many months I have fretted about this.  

I know I am extra cranky about this today since my two year old sleepover pal woke me up with a stomach flu this morning at 3 a.m.  He is still hanging out while mom has appointments and I am really looking forward to sleeping late tomorrow and waking up in a better mood. 




9 comments:

  1. Wow. I am amazed at your experience. The labs and other stuff follows the Wellness Exam because the doctor has to order them after they have seen you.
    Now that said, all of my tests, lab, mammo, and bone density tests were available for me to review by the time I got home from having those tests.

    My bone density test was in the T-4 range. My doctor called me that evening and we discussed her surprise and my shock at this. However we made plans to try Alendronate once a week. I will be seeing a specialist next month to discuss an alternative treatment.

    I would ask your doctor before next fall if he has any other suggestions. My PA and I have really discussed this and never EVER has had a receptionist call to explain test results. THAT is just stupid. I would think about a different doctor? Just my opinion.

    I am in a position where I have to really do my homework before I meet the endocrinologist. We will have to weigh the side effects vs. the severe bone loss.

    Miss Merry I'd give you a hug. You are not alone in your frustrations.

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  2. WOW!!I see my Dr. every 6 months and he orders blood work to be done right before the next appt. so he can go over them with me which i already do as I look up my results online.I can email him at any time and he usually gets back to me in a day...Did you have a dexa scan for osteoporosis? My husband has severe osteoporosis which is why he took early retirement because if he fell, he ran the risk of breaking a hip. He maxed out after 5 years of taking Fossamax and now gets a yearly transfusion of medication...It has improved his bone density in his back substantially and somewhat in his hips...He takes a calcium supplement and so do I...He was diagnosed in his mid 50's as was I...It is very common and most people usually get this to some degree. Thanks so much for always stopping by!!
    Hugs,
    Deb

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  3. Wow! I read your response to Sam too and I'm just so saddened by your experience. It seems people don't really care anymore. I'm going to meet my third primary care doctor since last May on Monday for a "meet and greet". I hope she's nice and that the office is efficient. I miss my Spokane doctor. I had his personal cell number and he even called and checked up on Dennis and I a few years ago when we both had the flu. We were SO sick and he offered to come to the house on his way home from church to check on us. What a shocker. We were his patients for over 20 years. Now, everytime I find a doctor they either quit, (first one), or the new insurance is making me change. Frustrating.
    Take care of yourself. Your story is a lesson for us all.
    Blessings,
    Betsy

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  4. I find the whole medical system has problems....prescribing problems, communication problems, diagnosis problems. Seems no one cares anymore about THE WHOLE PATIENT! I get so frustrated with the system and understand where you are coming from.
    Take some Calcium a couple of times a day and some D3 and Iron, that is my non medical advice:)

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  5. Something seems off - Can't people, especially over 65, see their doctor any time they have a concern? That has been my experience. And as others have commented, it is never a receptionist that initiates a treatment; not even a trusted nurse can be the implementer of major treatments. I hope you consider finding a new primary doctor.

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  6. It's true that you kind of have to take charge of your own medical issues, and you certainly have to go into the doctor's office armed with lots of questions. For what it's worth, my wife takes calcium and Vitamin D for her bones ... tho' as far as I can tell her bones aren't that bad.

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  7. Me again!!Thanks so much for stopping by!! So glad that you are enjoying the food I share..Yes, we are quite Blessed to live in a place where we have such a wide variety of ethnic foods to enjoy...I hope you can get this all cleared up soon...We have 3 large Healthcare systems in our area and one of them was my former employer...They were terrible as an employer but I truly do not have any issues with the care they provided when i had my joint replacement surgery which i felt was a top notch program...So far, we have no complaints. I still keep their health insurance through Pennie and can't wait until I can get medicare which will save me $500 a month!! I hate when people complain about medicare and supplement fees because it is one of the cheapest healthcare costs out there...
    Stay safe, healthy and happy!!
    Hugs,
    Deb

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  8. Hi Miss Merry! Just wanted to say that I'm 76 and all my bone scans come back Osteopenia. The first time I was told I had 'spinal degeneration' (doesn't that sound scary?) I asked if that meant spinal arthritis and was told yes. Well, that is not unusual at my age. I don't take any special meds (have heard about some bad side effects), but I do drink milk with extra Vit. D and take Vit D3 daily. That seems to work for me.
    Our physicians are on a portal... so we can text them personally whenever... also, the results from any tests come into the portal so sometimes we see them the same day. The doctor or nurse also calls to go over the results. And yes, always go into the doctor's office with a list of questions and/or text them with the portal. We usually get answers the same day.

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  9. Thanks once again for stopping by and for leaving such a sweet comment!! Looking forward to your next post!! Stay safe, healthy and happy!!
    Hugs,
    Deb

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Thank you so much for stopping by to visit! I love your comments and suggestions and read them all. Due to spam, I will now have to approve all comments.

Miss Merry